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Lawyers for Pablo Carranza, the 21 year-old younger brother of Raul Carranza, who the Reader profiled last March, announced this week that a suit has been filed on his behalf against Toby Douglas of the California Department of Health Care Services.

Pablo’s fate was similar to that of Raul: upon reaching age 21, the state’s Medi-Cal program cut his funding for in-home care related to his muscular dystrophy, despite a need for round-the-clock nursing. The state’s preference is for both Raul and Pablo to move into residential care facilities, though their family and lawyer claim that this not only risky for health reasons but severely limits their potential quality of life.

There’s also a question as to whether institutionalization, which the state would provide funds for, is cost efficient.

“The State has capped home nursing care for adults such as Pablo at $180,000 per year, which is at least $90,000 below the actual cost of equivalent care in a hospital or sub-acute facility,” says Debra Marley of Disability Rights of California, lead counsel for Pablo.

The suit argues that the ruling to provide less funding for in-home patients than for those in a residential facility violates a clause of the Americans with Disabilities Act stating that the disabled be served “in the most integrated setting appropriate to their needs.”

At this writing a judge has not yet been assigned to hear the case in federal district court.

“Like most people my age, I want to explore the world around me by going out, meeting new people, going to college, having a career, and I really just want to have a chance to have a normal life,” writes Pablo about his situation. “I want to live with my family because they help me pursue my goal to become a productive person.”

Comments
2

This is an outrage...I think this is what they were talking about when they use the term 'death panel'.

Dec. 8, 2012

This young man deserves the right to live in a safe supportive environment, as does every human. Unfortunately left brain bean counters do not see anything but numbers. If there is a death panel it is the love of a balanced bottom line and a disdain for humanity. I wish more people would stand up, speak out and challenge the bean counters and their overlords, the corrupt politicians who ignore the needs of people in favor of the greedy few. (Steps off of soapbox)

Dec. 9, 2012

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4S Ranch Allied Gardens Alpine Baja Balboa Park Bankers Hill Barrio Logan Bay Ho Bay Park Black Mountain Ranch Blossom Valley Bonita Bonsall Borrego Springs Boulevard Campo Cardiff-by-the-Sea Carlsbad Carmel Mountain Carmel Valley Chollas View Chula Vista City College City Heights Clairemont College Area Coronado CSU San Marcos Cuyamaca College Del Cerro Del Mar Descanso Downtown San Diego Eastlake East Village El Cajon Emerald Hills Encanto Encinitas Escondido Fallbrook Fletcher Hills Golden Hill Grant Hill Grantville Grossmont College Guatay Harbor Island Hillcrest Imperial Beach Imperial Valley Jacumba Jamacha-Lomita Jamul Julian Kearny Mesa Kensington La Jolla Lakeside La Mesa Lemon Grove Leucadia Liberty Station Lincoln Acres Lincoln Park Linda Vista Little Italy Logan Heights Mesa College Midway District MiraCosta College Miramar Miramar College Mira Mesa Mission Beach Mission Hills Mission Valley Mountain View Mount Hope Mount Laguna National City Nestor Normal Heights North Park Oak Park Ocean Beach Oceanside Old Town Otay Mesa Pacific Beach Pala Palomar College Palomar Mountain Paradise Hills Pauma Valley Pine Valley Point Loma Point Loma Nazarene Potrero Poway Rainbow Ramona Rancho Bernardo Rancho Penasquitos Rancho San Diego Rancho Santa Fe Rolando San Carlos San Marcos San Onofre Santa Ysabel Santee San Ysidro Scripps Ranch SDSU Serra Mesa Shelltown Shelter Island Sherman Heights Skyline Solana Beach Sorrento Valley Southcrest South Park Southwestern College Spring Valley Stockton Talmadge Temecula Tierrasanta Tijuana UCSD University City University Heights USD Valencia Park Valley Center Vista Warner Springs
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